多伦多慈善晚会

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2019多伦多LIVERight 慈善盛典

支持肝脏研究与教育的慈善晚会

2019年11月15日星期五,加入我们于Liberty Grand举办的慈善晚会,帮助我们庆祝50年来我们孜孜不倦地努力以将肝脏研究变为拯救生命的工具,助益于所有受肝病影响的加拿大儿童和青少来。

值此加拿大肝脏基金会50周年,今年的LIVERight晚会将会是一个尤其特别的夜晚。我们高瞻远瞩的创始人于1969年成立了加拿大肝脏基金会,令其成成为世界上第一个致力于资助各种肝病研究和教育的组织。

认识麦迪

Maddy CLF Volunteer

我叫麦迪,今年17岁。2016年,我被诊断出患有自身免疫性肝炎。在那之前,我看起来完全是一个正常的青少年。但是回想起来,我意识到我一直与多种肝功能衰竭的症状一起生活。

当时我将许多症状归因于青少年期正常反应:疲劳,食欲不振或几乎没有食欲,对学校和朋友的兴趣减少,以及情绪低落或沮丧——这些其实都是严重迹象,表明隐患正在发生。肝脏疾病被称为“沉默的杀手”,我相信这是真的,因为我自己就是在肝脏病情严重时,才出现许多明显的身体症状的。

加入多伦多LIVERight晚会,认识麦迪,感受她的热情和乐观给您的启迪。尽管患有严重的肝脏疾病,麦迪通过对话和鼓励社群,找到了克服肝病导致的并发症所需的力量。点击此处购票。

继续阅读麦迪的故事,点击此处

50 Anniversary Medal

加拿大肝脏基金会将嘉许多位特别嘉宾,表彰他们奉献与慷慨。因为他们多年来的支持,我们已在肝脏研究上投资超过3500万加元。

加入多伦多庆典,认识我们的“50周年表彰奖章“的获得者。

 

我们将以詹姆斯·邦德之风格欢庆!来宾们将闪亮登场,炫舞难忘之夜:开场欢迎会、四道菜式美宴、加拿大超级巨星Eric Ethridge的表演、叫价竞拍与无声拍卖,以及抗病斗士们鼓舞人心的故事。

Casino Royal photo

加拿大超级明星Eric Ethridge现场献演

Eric Ethridge wearing a white shirt and black cap

由专业的医生转为专职的乡村音乐家,这位人气急升的乡村歌手无疑经历了与众不同的道路。没有任何推广活动,他的乐曲在国内iTune排行榜上名列第一,于首六周内播放量超过300万次。随后,其主打曲在SiriusXM的风尚节目“On the Horizo​​n”上连续24周赢得上位。

与 Eric 相约于我们的慈善晚会,点击此处购票

地点:Liberty Grand: 25 British Columbia Rd, Toronto (Exhibition Place)
迎宾: 晚上5:30
招待:晚上5:30-6:30
晚会开始:晚 7:00

单票价: $250/位 ,含餐前小吃、三道菜晚宴、叫价竞拍、表演及更多。
围桌价: $2,250/桌10位

每分捐赠都帮助推动肝脏研究的进步。

Alessandria standing at home

Teenager Maddy walking in the forest

A young boy holds up a fish he just caught

Selena at 4

肝病是无声的杀手。大多数人对自己的肝病全然不知,直到肝脏严重受。肝病影响所有年龄段的男性、女性和儿童。 50年来,加拿大肝脏基金会(CLF)将捐赠者的卑捐款投入到教育计划和服务中,通过资助急需的肝脏研究为肝病患者提供希望,以行动展示了其对于加拿大人的承诺。

想了解更多信息或赞助机会,请联系 Karen Lyon – 电子邮件 或 致电 (416) 491-3353.

2019 全国赞助

银赞助

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认识麦迪

Teenager Maddy walking in the forest

我叫麦迪,今年17岁。2016年,我被诊断出患有自身免疫性肝炎。在那之前,我看起来完全是一个正常的青少年。但是回想起来,我意识到我一直与多种肝功能衰竭的症状一起生活。

当时我将许多症状归因于青少年期正常反应:疲劳,食欲不振或几乎没有食欲,对学校和朋友的兴趣减少,以及情绪低落或沮丧——这些其实都是严重迹象,表明隐患正在发生。肝脏疾病被称为“沉默的杀手”,我相信这是真的,因为我自己就是在肝脏病情严重时,才出现许多明显的身体症状的。

我一直是个精力不足的人。童年时期,我经常问父母是否可以小睡或睡觉。我很乐意坐在那里看着家人做事,没人会觉得不妥。 “麦迪真是个安静的女孩。”我经常听到别人这么说我。

关于我的胃口,妈妈知道她为我做的饭菜很多都剩下了。我的食欲一直不错的,尤其喜欢那些保质期短的食物,例如酸奶、蔬菜和水果!

接下来是瘙痒。我总是觉得痒,到处痒,经常痒。许多人以为是冬天的天气令到我皮肤干燥,建议我使用保湿霜袪痒。

最终,如果不是我出现黄疸变成了“香蕉人”,谁知道我还要等多久才被送往医院!黄色(黄疸)先是出现在我的眼睛中,当时我以为是由近期转用隐形眼镜引起的。接下来老师和朋友们也注意到了我肤色的异常。有一天跟妈妈一起开车时,她发现了我眼角的黄染,就马上约了家庭医生看诊。家庭医生认为我可能是由不当饮食感染了某种肝炎,即刻让我去做血液检查。

医生答应拿到检验结果后尽快给我妈妈打电话。巧的是但他得了重感冒休息了几天。周末时,我们试图像往常一样在家里休息。星期天我们去商场购物。妈妈一直放心不下我,总觉得事情有点不对劲。我则非常疲惫,不停地抱怨自己的不适。妈妈决定第二天带我去医院。

在我家乡的医院,我们收到了第一个检测结果。我记得护士走进来说,她很吃惊为什么我没有早点来医院。这一检测开始了我螺旋式下降的过程,导致了我最终的诊断。

在多次检测以及我的健康状况的迅速恶化后,当地医院将我转送至病童医院。我和家人松了一口气。妈妈坚持每天晚上睡在我的房间里,爸爸和姐姐则每天陪我们直到晚上。父母都非常担心,我觉得一切都失控了。对全家人来说,那都是一个非常担忧的时刻!

最难熬的是肝脏活检。我并没有感到很痛,尽管全身插针令我觉得自己像个“人肉针垫包”(这可不在我的愿望清单上!)。被送进医院近一个月后,我被告知我很快就可以回家了,那时离圣诞节只有几天之遥。我和家人为我可以出院回家而开心不已。

接下来的一段日子非常困难。我服用大量药物,进行频繁的血液检查,仍然觉得困倦不堪,而不得不终日昏睡。一些药物的副作用很严重。我似乎在不眠之夜或真实的噩梦中挣扎。无论白天或晚上,我都觉得需要吃些什么,什么都行——以至于我睡觉时不再戴牙套,因为我担心自己会在睡梦中将它咀嚼吃掉!

直到今天,我仍在与其他的副作用抗争,如脱发、皮疹、皮肤干燥、食欲不振、躁动不安等。我一直担心发展成骨质疏松症、白血病、癌症,当然也担心某一天需要接受肝脏移植。

我承认我的生活糟透了!当我感觉状态还好时,我可以回到学校上学。我没想到学校和老师们都知道了我的病情。不久,同学们开始用异样的眼光看我。一段时间后,我习惯了这种日子,保持前行,在学校里尽力而为。是的,我感到“与众不同”。我从来不想去朋友家过夜或与朋友们出去玩——我太累了,觉得和家人待在一起更舒服,压力也较小。

被诊断出大约一年后,我开始感觉对自己的疾病有了更多的“拥有权”。我甚至在一个商业颁奖晚会上为数百名女性演讲,并在台上弹着吉他唱了几首歌。我向观众传达的信息是,接受您无法改变的事情,感恩您拥有的一切,而最重要的是,追随你的梦想!

这是我对任何患有肝病的儿童和青少年的建议。有时候,疾病会使你感到与众不同和孤独。但是,这种经历会使你变得更强大。我选择以积极的态度看待我的疾病。没有它,我不可能有机会去教育和启发社群内外的人们,当然,我也不可能帮助提升对肝病的认知。

我邀请您一同参加11月15日在多伦多举行的LIVERight筹款晚会。请点击此处购票。

2018 LIVERight晚会回顾

感谢您参与2018年多伦多LREEight慈善晚会,支持患有肝病的儿童和青少年!我们希望您获益于当晚我们董事会主席Sherman博士及荣誉研究员Kamath博士的鼓舞人心的讲话。

我们很高兴地宣布,在您的支持下,我们于全国多地的慈善晚会中筹集了超过100万加元。您的慷慨帮助,为探索肝病新疗法、为患者支持服务的持续进行,奠定了基础,

由于你的慷慨,我们能够为受肝病影响的儿童打造新的希望之光。你的参与,将为研究人员提供所需的以继续改善加拿大生活的资金,并将使我们进一步接近所寻找的答案。

2018i活动图片库

2017i活动图片库

认识我们的特别嘉宾

Alessandria standing at homeAlessandria was first diagnosed with Primary Sclerosing Cholangitis (PSC) a disease that slowly breaks down the bile ducts of the liver, at two-years-old. Suffering from frequent tummy aches, sleeping for 12 to 13 hours a night, and napping for three hours a day, her parents took her frequently to the ER where she was eventually given her diagnosis. PSC is manageable, but will never go away.

“We were shocked to hear that for the rest of her life Alessandria would be taking medication,” remarks Natalie, Alessandria’s mother.

Now at age 10, Alessandria sees her hepatologist every three months where she undergoes blood work to check her liver enzyme numbers. Her parents continue to ensure she keeps on top of her countless medications and vitamins.

Alessandria’s parent’s worst fear is that one day soon she will need a liver transplant.

Still, it can be difficult for Alessandria and her family to interact with others who have little understanding of how this liver disease impacts their family.

“People will say she doesn’t look that sick so it can’t be that bad,” says Natalie, Alessandria’s mom. “Yet, they don’t know how she feels daily, the amount of medication she needs to take, or how many hospital visits she must endure.”

A young boy holds up a fish he just caught“It is amazing how quickly a life can change!” remarks Julie, Brock’s mother.

Brock Chessell was on the ice feeling fine, but just two days after hockey tryouts ended, the 10-year-old St. Mary’s resident was in the hospital with a liver cancer diagnosis.

After a visit to their family doctor to check on Brock’s severe weight loss, he was diagnosed with hepatoblastoma, a type of liver cancer.

Brock, also a pitcher and second baseman, plays triple-A for the U11 Ontario Expos. So you can see that Brock was a very active sports enthusiast! But from that day at their doctor’s office and for the next five months everything changed for Brock and his family – he couldn’t participate in sports; he missed school due to long and arduous chemo sessions. But Brock and his family stayed positive and knew a cure would be found before it was too late.

Brock was placed on the waiting list for a liver transplant as the liver cancer specialist ruled out the possibility of receiving an organ donation from a living donor. On August 23rd Brock had a liver transplant. Brock is now considered cancer free and just finished the last round of chemotherapy in September.

Brock’s determination and support from family and friends enabled him to be one of the first liver transplants patient to be released from hospital so quickly!

“We will be forever grateful to the organ donor and his or her family for offering this incredible gift of life to Brock,” says Julie, “and we are so thankful to the Canadian Liver Foundation knowing that their focus on liver research is so strong and successful”.

Nathan was born November 15, 2015 in Hamilton, Ontario.

A mom holds her baby son and shows a long scar on her abdomenLike most babies, during the first few days after birth Nathan was quite jaundiced. He was routinely treated with photo-therapy and we were sent on our way.

During the first two weeks after photo-therapy, we noticed that he was becoming increasingly more jaundiced. At each trip to the family doctor, I expressed my concerns for his jaundice, often being reassured that the yellow presence after photo-therapy takes time to fade. By the third visit, we convinced the doctor to retest his bilirubin, which unfortunately had increased and he was diagnosed with biliary atresia.

At five weeks old, Nathan had a Kasai procedure. Over the next few months the Kasai partially worked, which was so helpful to allow Nathan to get a little bit bigger for transplant assessment.

In May of 2016, Nathan’s health dramatically declined and his liver began to fail. On June 15th, 2016, Nathan had a liver transplant at Sick Kids Hospital in Toronto; his mom Alicia was his living donor. What a day that was!

Now, Nathan is a happy healthy 19 month old! He is so silly; he loves playing with his older brother Logan, and can easily keep up with other kids his age. You would never know that just one year ago, our healthy, happy boy was not so healthy” Alicia Nathan’s Mom.

Randy Bachman performed at the 2017 LIVERight Gala in Toronto.

Randy Bachman

Few artists can claim to have made a bigger impact on popular music than Randy Bachman, widely regarded as the “architect of Canadian rock ‘n’ roll.” His renowned songwriting acumen produced “You Ain’t Seen Nothing Yet,” “American Woman,” “Let it Ride, “Taking Care of Business,” “Looking Out for #1,” “No Sugar Tonight” and “These Eyes,” tracks that have become pop‐culture touchstones. His accomplishments haven’t gone unrecognized, of course. In addition to his induction into the Musicians Hall of Fame in Nashville, Bachman has the distinction of being the only one of his countrymen to be inducted twice into the Canadian Music Hall of Fame, most recently alongside his fellow original Bachman‐Turner Overdrive members in 2014.