The Canadian Liver Foundation (CLF) is committed to protecting the privacy of the personal information of its members, donors, clients, volunteers and employees. When you share with us your personal information or contact us in any way, our commitment is to the protection of your personal information. We value the trust of our stakeholders and of the public and recognize that maintaining this trust requires that we be transparent and accountable in how we treat the information that you choose to share with us.
In our quest to increase awareness of liver health and raise funds for liver disease research and education across the country, we frequently gather and use personal information. The Canadian Liver Foundation complies with, and endeavours to exceed, the legal requirements of Provincial privacy legislation and Canada’s Federal Personal Information Protection and Electronic Documents Act (PIPEDA), which is based on the 10 Privacy Principles contained within the Canadian Standards Association (CSA) Model Code for the Protection of Personal Information.
Definition of Personal Information:
Personal information is any information about a specific, identifiable individual including such commonly available details as name, address and telephone number.
Despite the fact that some personal information is widely available (e.g. through telephone directories or public database), this does not, in any way, lessen the responsibility to apply the CSA Code’s principles to its collection, use and disclosure. The CSA Code incorporates the principles that every element of personal information should only be used for purposes that are defined and explained in advance to the individual and that use or disclosure for any other purposes requires further knowledge and consent.
The Canadian Liver Foundation’s 10 Privacy Principles
1. Protection of Personal Information
The Canadian Liver Foundation is responsible for the protection of your personal information that is obtained through our national office, regional offices or volunteer activities and has designated a Chief Privacy Officer who is accountable for the CLF’s compliance with the legislation. We accept this responsibility whenever we or an agency on our behalf, handles your personal information.
2. Identification of the Purposes for Collecting Personal Information
The Canadian Liver Foundation collects a limited amount of personal information about its volunteers, donors and potential supporters, including name, title, address, telephone number and other relevant contact information.
This information is collected when you share with us your personal information or contact us in any way – such as through the mail, telephone or email or by supporting our organization through donations, participating in an event, attending an education session or being a part of our volunteer base. We also collect information (name and address only) from other charities through fundraising lists traded with third parties (charities must have prior permission from their donors to trade their personal information with other charities).
This personal information collected by the CLF is used for the following purposes:
- Process and provide tax receipts for donations;
- Comply with Canada Revenue Agency requirements;
- Provide information about the Canadian Liver Foundation, liver disease, research and education programs;
- Provide information pertaining to an event or program for which an individual has registered;
- Respond to any information requests;
- Promote opportunities where volunteers, donors and potential supporters may help the Canadian Liver Foundation in its mandate to support liver disease research and education.
3. Knowledge and Consent
We will only collect, use or disclose personal information with your knowledge and consent. This may be with your express consent (for example, when you voluntarily provide information on a form for purposes you clearly understand and agree to) or by declining an opportunity to opt-out of our collection, use or disclosure of your personal information.
4. Limiting the Collection of Information
The Canadian Liver Foundation only collects personal information relevant to the purposes that have been identified in Section 2. You have the right to provide as much or as little personal information as you choose. If you provide information about your personal or family medical history, this information will be considered as your information only.
5. Limiting Use, Disclosure and Retention of Collected Information
6. Accuracy of your Personal Information
Aside from third-party fundraising lists, practically all personal information that we collect comes directly from individuals themselves, for example: on our donation slips or information request forms, in telephone conversations, on registration forms and through donor correspondence.
7. Safeguards for your Personal Information
We are open about our privacy policies and procedures. We make reasonable efforts to inform individuals about our policies and procedures, the purposes for which we collect, use or disclose personal information and how to access your personal information.
9. Right to Access Personal Information
At any time, you are entitled to view your personal information on file with the Canadian Liver Foundation. Upon request, we will inform you if we hold any personal information about you and provide you with access to this information. If we have any personal information about you, we can also tell you for what purposes it is used or disclosed.
In order to access or update your personal information or to make a request to withdraw consent to the collection, use or disclosure of your personal information, please contact our Chief Privacy Officer:
Chief Privacy Officer
Canadian Liver Foundation
801-3100 Steeles Ave E
Markham, ON L3R 8T3
1 (800) 563-5483
Canadian Liver Foundation staff and/or volunteers are only able to update personal information on file when received directly from you, your legal guardian or power of attorney. Current and verifiable power of attorney is required for any changes or updates.
10. Your Right to Challenge
Last Revision Date: August, 2016